“The best therapy for a teenager with cancer is another teenager with cancer. It’s hard enough being a teenager, but being treated for cancer and finding yourself either among little kids or the elderly just isn’t right – they need their own place where they can be with each other and most importantly, be themselves.” – Roger DaltreyIn North Carolina, Sally Webb, CEO of The Special Event Company in Cary and a fellow Brit, is a founding board member and regional lead of the TCA movement following a decade of involvement with Teenage Cancer Trust. Raleigh-based First Citizens Bank, the largest family-owned bank in the U.S., pledged $1.5 million to jump start efforts across the state, including the launch of a powerful TV ad campaign using a special version of Townshend’s hit song, “Let My Love Open the Door,” performed by Daltrey. First Citizens Bank has made TCA its lead philanthropic cause, helping to raise money and awareness through a special website, LetMyLoveOpenTheDoor.com, and a social media campaign using the hashtag, #LetMyLoveOpenTheDoor. As a result of First Citizen’s commitment, Raleigh will serve as the U.S. hub for TCA in the Southeast, helping to further initiatives planned for Duke Medical Center, UNC Hospitals in Chapel Hill and Wake Forest University’s Bowman-Grey Medical Center in Winston-Salem. Across the U.S., TCA has projects underway in New York City, Cleveland, New Haven, Philadelphia, Boston, San Francisco, Tampa, Fort Worth, and Chicago, and partnerships with more than 50 hospitals around the country are in various stages of planning and development. At First Citizen’s Center in Raleigh, guests were treated to cocktails, dinner and “Whograss” music from The Hill Benders, performing hits by The Who in bluegrass style. In addition to Daltrey and Webb, speakers included TCA Executive Director Simon Davies, TCA board member and legendary band manager for The Who and Judas Priest, Bill Curbishley, TCA Chair Rebecca Rothstein and representatives of First Citizens Bank that included Chief Strategy Officer and TCA board member Jeff Ward together with Senior VP, Corporate Communications and TCA Liaison Lead Barbara Thompson. “It has been remarkable to see how engaged people become when they learn what TCA is all about,” said Davies, who joked on stage about being one of numerous speakers addressing the room in a British accent. “But the best part is the response of the young people who finally get to experience cancer treatment in a new way – in a place designed just for them – making a difficult time a little better for them and for their families.” One of the evening’s highlights came when Daltrey introduced and embraced three young cancer survivors with whom the rock star had visited on previous trips to N.C. Sarah Stream, Sarah Thomas and Alex Werner spoke movingly of their personal experiences undergoing cancer treatment as teenagers. During the evening’s fundraising portion, bidding paddles were held high as once-a-lifetime auction items such as backstage VIP passes for The Who and Pearl Jam concerts, a private party in Los Angeles including appearances by the bands, autographed guitars and other prizes were offered up. The opportunity to serve as roadies for The Who brought the most enlivened response. Daltrey will continue to race across the country from concert performances to TCA fundraisers and back again. The awareness for TCA, he insists, is as valuable – perhaps more so – as the money raised at each event. At a major upcoming event scheduled in Los Angeles, the star wattage will be cranked up as Daltrey, Townshend, Vedder, Jett and the TCA team enlist even more support for a population of young people who have gone too long without it. About Teen Cancer America Teen Cancer America is designed to help hospitals and healthcare professionals bridge the gap between pediatric and adult oncology care by educating and support hospitals and outpatient facilities in the development of specialized units for this age group. TCA brings together physicians and allied healthcare professionals in both pediatric and adult oncology. Age targeted care for this population is necessary for medical and appropriate psychosocial development of this unique age group. Research shows that outcomes associated with some cancers that target this age group have not improved in over 30 years while improvements have been made in both pediatric and adult cancers. Teens and young adults with cancer are long overdue for an upgrade and TCA can hopefully light the fire in America’s health systems. To view original press release please visit www.prweb.com
Tag: Roger Daltrey
This article was originally published online at Forbes.com, written by Jim Clash.
Date: Thursday, April 28, 2016 | Time: 5:30 p.m.
Location: The First Citizens Center, 4300 Six Forks Road, Raleigh, NC
Individual Ticket Price: $300
To purchase individual tickets or become a sponsor, contact
Barbara Taylor Leedy at The Special Event Company.
E: firstname.lastname@example.org T: 919 459 8785
For more info, visit the NC Cares page here.The event will include a VIP reception with Daltrey and friends, plated dinner, a live auction, raffle prizes and entertainment from bluegrass superstars The HillBenders. Prizes include signed The Who / music memorabilia, VIP meet and greet tickets for The Who Hits 50! Tour, and much more.
“The leadership that the North Carolina business community is demonstrating in support of TCA’s mission to provide age-specific support to their teens will set a benchmark for other states to follow. I am so thankful for the support and happy to be able to join the business leaders, healthcare professionals, and most importantly, North Carolina’s patients and survivors in April to kick off this initiative.” – Roger Daltrey
SPONSORSHIP & REGISTRATION:
Interested in becoming a sponsor for North Carolina Cares fundraiser? Download our Sponsorship Packet for more information about opportunities and registration.
For further information regarding this event, to purchase a table, or to become a sponsor, contact Barbara Taylor Leedy at The Special Event Company.
E: email@example.com T: 919 459 8785
50 STATES 50 STORIES: NORTH CAROLINA
We stopped in North Carolina during the Road Rebellion to meet Julia, story is featured above. Sadly Julia passed away in March 2015. We will continue to share Julia’s story, as she wanted both her voice to be heard and to be a part of the continuing campaign to raise awareness and support for teens and young adults with cancer.
MORE ABOUT TEEN CANCER AMERICA
- The first TCA Unit was successfully launched in 2013 at the UCLA Medical Center in Santa Monica, California.
- Within the next decade, more than fifty hospitals in the United States have been slated to receive the same TCA program, benefiting millions of young cancer patients across the country.
- Since its inception in 1989, TCA’s sister organization in the U.K., Teenage Cancer Trust (TCT), has successfully raised more than $150 million and built more than 30 teen cancer units throughout the U.K.
- The units supported by the North Carolina Cares event will provide a hospital venue where teen cancer patients can be medically treated with their peers. These units also include a TCA lounge where teens can escape from the harsh realities of cancer and interact with outside friends and family. Each TCA lounge features computers, pool tables, plasma TV’s, movies and video games for interactive play.
MONROE CARELL JR. CHILDREN’S HOSPITAL AT VANDERBILT UNIVERSITY MEDICA CENTERVanderbilt-Ingram Cancer Center has developed a collaboration with music industry colleagues in Nashville to expose AYA cancer patients to good music and to people “in the industry.” A program was developed by a passionate young woman named Caitlyn called the Bandade Backstage Pass, which allows cancer patients access to cool shows and musicians. In partnership with Teen Cancer America, Vanderbilt announced plans for our AYA unit as well as TCA’s newest ambassadors, The Band Perry!
MEMORIAL SLOAN KETTERING CANCER CENTERMemorial Sloan Kettering In 2015 we saw the development and near completion of multiple facets of Memorial Sloan Kettering Cancer Center’s Teen and Young Adult Program including the Lounge and design for our mobile app. Formal launch to come in 2016! MSK is excited about the hiring of two new staff for their AYA program.
YALE – NEW HAVEN CHILDREN’S HOSPITALYale-New Haven Children’s has had its first full year of its dedicated Adolescent-Young Adult Oncology Clinic! Currently we are moving forward with creating the dedicated Teen Center on our inpatient unit but nearby our clinic so it can serve both. We have dedicated a psychiatric/psychology team that serves our AYA clinic and follows patients when admitted. Additionally, we successfully acquired funds to pay for part time AYA clinic coordinator from Strike Three Foundation, founded by Craig Breslow, Yale alumnus, pitcher for the Boston Red Sox.
DANA FARBER CANCER INSTITUTEDana Farber is hiring a Program Manager in 2016 thanks to Teen Cancer America! This hire will be a joint pediatric-medical oncology hire and represents our “stepping out” as a formal joint program! With this hire we hope to extend our education about AYA issues, both internally and at outside events. This new manager will allow up to generate research for this population as well as customize care for all of our current and future patients! [caption id="attachment_6677" align="aligncenter" width="700"] Entryway to the Angie Fowler Unit at the Rainbow Babies & Children’s Hospital[/caption]
RAINBOW BABIES & CHILDREN’S HOSPITAL & UNIVERSITY HOSPITALS SEIDMAN CANCER CENTERThe Angie Fowler Cancer Institute at Rainbow Babies University Hospital launched the “Cancer Education Series (Part 1)” to educate clinicians about AYA issues. Along with a nurse navigator, 4 AYA patients were awarded scholarships to attend Stupid Cancer’s CancerCon, where we also had an AYA-designed exhibit where we gave out free hugs! The “So How’s Life After Cancer?” survivorship program is offered to all survivors attending survivorship clinic during their visit. We hosted a Beauty Day, where fellow survivors provided mini-makeovers, conversation, and a chocolate therapy bar to inpatients, outpatients, and caregivers. We are currently working with our new friends at MadeSmart to make functional and fun products for AYA patients. We hosted our annual AYA Cancer Bash, a celebration of life dinner with over 150 patients, families, and staff that started in the outpatient clinic and finished with dessert in our rooftop garden. We were given the CureSearch Community Award and grant to study AYA distress levels during the period of transitioning off treatment and into survivorship. We also received a grant from the UH Sustainability program to offer fresh organic produce to our patients/families once a week during growing season (June-Oct) so that they could learn how to eat healthier. Finally, our AYA Nurse Navigator was awarded the Margaret Marting- Rainbow Trustee Award for Clinical Excellence!
[caption id="attachment_6678" align="aligncenter" width="300"] Dr. Klein & Dr. Albritton signing the contract for a new
AYA unit at Baylor All Saints Hospital[/caption]
[caption id="attachment_6680" align="aligncenter" width="300"] The Children’s Hospital of Philadelphia’s Graduating
Class of 2015[/caption]
FORT WORTH ADOLESCENT AND YOUNG ADULT ONCOLOGY COALITION: COOKS CHILDREN’S, HARRIS METHODIST HOSPITAL, & BAYLORThe Fort Worth Adolescent and Young Adult Oncology Coalition’s (a nonprofit organization composed of health care organizations, oncology providers, and foundations in the Dallas/Fort Worth area) committees continue to work hard on plans, including hiring an architectural firm and getting valuable input from coalition members on the look and feel of our new AYA oncology unit, debuting the design this past fall. In November Dr. Albritton and Dr. Klein signed the formal contract with Baylor All Saints Hospital to begin building our AYA oncology unit! We’ll soon begin building the core of our AYA-specialized unit staff, which will consist of a nurse practitioner, patient navigator, social worker, activity coordinator and psychologist.
THE CHILDREN’S HOSPITAL OF PHILADELPHIAThe Children’s Hospital of Philadelphia had its first annual Graduation Ceremony recognizing AYA patients and survivors who were graduating from high school and college. We launched the AYA music therapy cart as well as hosted an ongoing podcast, AYA Cancer Chat: Life Interrupted, featuring teens and young adults from the cancer center discussing their experiences with cancer diagnosis and treatment. Activities and other events including a Day at the Phillies, Joy Juice event with Camden, and ACS’ Look Good . . . Feel Better for Teens.
LUCILE PACKARD CHILDREN’S HOSPITAL STANFORD & STANFORD MEDICAL CENTERThe Lucile Packard Children’s Hospital at Stanford’s Adolescent & Young Adult Cancer Program was very excited to launch our program in April! We have started our AYA PFAC (Patient Family Advisory Council) made up of 10 AYA patients with staff and we have set our goal for the first one-an AYA Peer to Peer Mentoring Program. We will be having our first workshop to start the program in Spring 2016. Our AYA program received a Clinical Innovative Fund through the Stanford Cancer Center to purchase Fitbits and IPads to help our patients monitor daily activity) as well as connect them to a Fitbit community for 50 patients along with weekly Yoga/Deep breathing technique classes. We are hoping this can encourage some healthy competition among patients as well as social connections! The company Glassybaby has created a candle called “Red Barn” for the Stanford Adolescent & Young Adult Cancer Program with 10% of proceeds benefitting us. [caption id="attachment_6679" align="aligncenter" width="1217"] Guests at Moffitt Cancer Center’s holiday party[/caption]
MOFFITT CANCER CENTERMoffitt Cancer Center’s Swim Across America Adolescent and Young Adult Lounge officially opened on April 30th 2015 with the help of our AYA Patients, Teen Cancer America, and over 100 guests and community partners. The space is available to our patients 24/7 and is already a big hit. A patient told us that while he visits Moffitt for his outpatient treatments, he is grateful for the space as he feels safer in the lounge instead of a waiting room between appointments. Additionally, one of our inpatients has glittered our lounge with his artwork and loves that the space is nearby but doesn’t look like the same 4 walls! In December the AYA Program hosted a party at a restaurant owned by AYA Program research benefactor, Richard Gonzmart, and welcomed over sixty patients and guests. One of our new AYA patients said, “I didn’t feel weird being bald!” while another said “I wasn’t sure I was ready to meet other people who traveled a similar path as me, but I’m glad I came!” We began the research part of the hiring of a new staff member for the AYA Program using our Teen Cancer America grant to be hired in 2016. We are asking physicians, clinical team members and our very own AYA patients what types of assistance we are doing great in, what needs work, and what would benefit them the most.
RONALD REAGAN UCLA MEDICAL CENTER & UCLA MEDICAL CENTER SANTA MONICAUCLA’s Daltrey/Townshend Teen & Young Adult Cancer Program has recruited Alexis Gentry as one of our wonderful social workers serving the leukemia, lymphoma, and bone marrow transplant TYA population as well as Emma Lidington as the lead research assistant for our ongoing TYA survivorship research portfolio. We must extend our thanks to team members Grace, Sufia, and Emma – who led the effort to establish the oncofertility infrastructure for our program and an additional thanks to Grace and Sufia who lead the AYA nursing educational efforts!
Cancer America/First Citizens Bank program to help young adults with
cancer.[/caption] First Citizens, America’s largest family-held bank (assets: $30 billion), says it will make a “significant contribution” to open teen cancer centers in the southeast, the bank’s primary business market. The effort will be promoted to the bank’s entire 18-state network. Teen Cancer America is currently in talks with more than 50 U.S. hospitals, 20 of them in the southeast, including four major ones within the Carolinas. Jeff Ward, chief strategy officer at First Citizens, had dinner with Daltrey awhile back, which got the initial ball rolling. “I think the real outcome is what happens in the communities when we start working with hospitals to help bring cancer units into their space,” said Ward. Teen Cancer America was founded in 2012 as the rock stars’ first effort across the pond. Four U.S. teen centers have launched so far, including one at UCLA Medical. Initial funding came from a California fundraiser featuring Daltrey, Robert Plant and Dave Grohl. Later, Daltrey and Elvis Costello raised $1 million at a Madison Square Garden concert in New York for Memorial Sloan Kettering. The MSK teen center is scheduled to open this winter. [caption id="attachment_6585" align="aligncenter" width="660"] First Citizens Bank is helping TCA open teen cancer centers in the
southeastern U.S.[/caption] “It just makes sense that if we, as a society, feel it’s right for children to go to kids’ hospitals with teddy bears and nurseries, and adults have hospital lounges where they can socially interact, teens should have somewhere, too,” said Daltrey. “But there’s basically nothing in the American system. They either are dumped in with children or with adults.” Townshend, who wrote “Let My Love Open The Door,” is proud of the new version of his song. The guitarist and band-mate Daltrey have been partners against teen cancer for nearly two decades via the United Kingdom’s Teen Cancer Trust, raising in excess of $150 million. “Cancer for teens is particularly brutal,” Daltrey said. “I remember that period myself as being upside down and sideways, with huge emotional shifts and isolation, not quite fitting in here, there and everywhere. It’s an incredibly difficult period in everybody’s life. I was lucky to get into a profession where the backbone was totally that generation. Without adolescents and teenagers, the music business as we know it would not exist.” As for the teens with cancer, Daltrey gives them high praise. “They’re fantastic, truly remarkable considering the circumstances. You’ve got to remember that children with cancer, although they may suffer terribly, don’t really understand what they’ve got. A teenager knows what horrors can come to them. So every way around, it’s tough for that age group.” (Editor’s Note: To see the new television commercial featuring “Let My Love Open The Door” and video documentary of Roger Daltrey in the studio, click